Terms of service
Welcome to the Sickle Cell Care Collective (SCCC) website.
These Terms of Service ("Terms") govern your use of this website and any related services, resources, surveys and content provided by the Sickle Cell Care Collective.
By accessing or using this website, you agree to be bound by these Terms. If you do not agree, please do not use this website.
About Us
The Sickle Cell Care Collective provides information, education, resources and research initiatives to support people living with sickle cell disease, their families, carers, healthcare professionals and the wider community.
Our website is powered by Shopify.
Use of Our Website
You agree to use this website lawfully and respectfully.
You must not:
- Use this website for unlawful purposes.
- Attempt to gain unauthorised access to the website or its systems.
- Introduce viruses, malware or malicious code.
- Interfere with the operation or security of the website.
- Copy or reproduce website content without permission, except where permitted by law.
We reserve the right to restrict or remove access where these Terms are breached.
Educational Information
The information provided throughout this website is intended for educational and informational purposes only.
It should not be used as a substitute for professional medical advice, diagnosis or treatment.
Always seek advice from your GP, specialist haematology team or another qualified healthcare professional regarding your individual circumstances.
Never delay seeking medical advice because of something you have read on this website.
Surveys & Research
The Sickle Cell Care Collective undertakes surveys and research projects to improve understanding of the experiences of people living with sickle cell disease, their families and healthcare professionals.
Participation in any survey is voluntary.
Survey findings may be used to:
- identify trends
- inform reports and publications
- improve educational resources
- support healthcare improvement
- contribute to research and advocacy
Where findings are published, individual participants will not be identified unless they have provided explicit consent.
Donations
The Sickle Cell Care Collective may accept donations through this website.
Where donations are available, payments will be processed securely through trusted third-party payment providers.
We do not store your full payment card information.
Intellectual Property
Unless otherwise stated, all original content on this website, including text, graphics, branding, downloadable resources and website design, is owned by the Sickle Cell Care Collective and is protected by copyright and intellectual property laws.
You may:
- View and download resources for personal, educational or non-commercial use.
- Share links to our website.
You may not:
- Modify our content.
- Republish our content as your own.
- Sell or commercially exploit our content without written permission.
Some downloadable resources may contain content owned by third-party organisations. Those materials remain the property of their respective owners.
AI-Generated Images
Some illustrations and visual assets used throughout this website have been created or enhanced using artificial intelligence (AI).
These images are provided for illustrative purposes only and should not be interpreted as depicting real patients, healthcare professionals or clinical scenarios unless explicitly stated.
Third-Party Links
This website contains links to third-party websites and organisations for additional information and support.
These websites are operated independently from the Sickle Cell Care Collective.
We are not responsible for the content, availability or privacy practices of external websites.
Relationship with Shopify
This website is hosted by Shopify.
Shopify provides the technology platform that enables us to operate our website and, where applicable, securely process donations.
Shopify is responsible for its own services and privacy practices in accordance with its own policies.
Privacy
Your use of this website is also governed by our Privacy Policy.
Please review our Privacy Policy to understand how we collect, use and protect your personal information.
Disclaimer
While we make every reasonable effort to ensure the information on this website is accurate and up to date, we cannot guarantee that all content will always be complete, current or free from errors.
Medical guidance and clinical recommendations may change over time.
Use of this website is entirely at your own risk.
Limitation of Liability
To the fullest extent permitted by law, the Sickle Cell Care Collective shall not be liable for any loss, injury or damage arising from the use of, or reliance upon, information contained within this website.
Nothing in these Terms excludes liability where such exclusion would be unlawful.
Changes to These Terms
We may update these Terms from time to time.
Any changes will be published on this page together with the revised "Last updated" date.
Your continued use of the website following any changes constitutes acceptance of the updated Terms.
Governing Law
These Terms are governed by the laws of England and Wales.
Any disputes arising from the use of this website shall be subject to the exclusive jurisdiction of the courts of England and Wales.
Contact
If you have any questions regarding these Terms of Service, please contact: