Stronger Together.

We are a collective of patients, families and advocates working to transform sickle cell care through education, support and meaningful change.

Your Sickle Cell Community Get Involved

National crisis and emotional support services available 24/7.

Samaritans
Free, confidential emotional support for anyone experiencing distress or struggling to cope.
116 123

Shout
Free, confidential crisis text service for anyone who would prefer to text rather than talk.
Text SHOUT to 85258

PAPYRUS HOPELINE247
Confidential suicide prevention support for anyone under 35 experiencing suicidal thoughts, or those concerned about a young person.
0800 068 4141 or Text HOPE to 88247

NHS 111
Urgent medical and mental health advice for non-life-threatening situations.
111

- Our Programmes -

  • Beyond the Crisis

    Working with healthcare providers to improve sickle cell crisis care through education, training, and patient-led insight.

    Find out more 

  • The Care Navigator

    Helping people living with sickle cell navigate healthcare, benefits, wellbeing, and support through trusted information and practical resources.

    Find out more 

  • The Pain Plan Project

    Helping people living with sickle cell understand, access, and confidently use personalised pain plans through practical guidance and education.

    Find out more 

  • Voices in Crisis

    Working with people living with sickle cell to capture lived experiences that inform advocacy, influence services, and drive meaningful improvements in care.

    Find out more 
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Real Support. Real Impact.

How We Help
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We Connect

Bringing together patients, families, healthcare professionals, and partners to strengthen support, collaboration, and shared learning.

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We Educate

Providing education and practical resources that improve understanding of sickle cell for patients, families, communities, and healthcare professionals.

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We Drive Change

Using lived experiences, research, and community insight to influence healthcare, shape services, and improve outcomes.

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We Empower

Equipping people living with sickle cell with the knowledge, tools, and confidence to advocate for their care and make informed decisions.
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The People Behind Our Purpose

17,500+ people in the UK are living with sickle cell.

300+ babies are born with the condition each year.

Every story shared, every resource created and every conversation started brings us one step closer to better care, greater understanding and improved outcomes for everyone affected.

Explore Our Resources

Healthcare Resource Hub

Practical tools, learning resources and clinical guidance to help healthcare professionals improve sickle cell care.

Becoming a Blood Donor

Benefits & Financial Support

Find guidance on benefits, employment, education and
the financial support available to you.

Your Sickle Cell Community

Discover local services, support groups, national
organisations and ways to connect with your community.

Downloadable Resources

Access practical checklists, guides and templates to help you navigate everyday life with confidence.