Your Sickle Cell Community

A central place to find sickle cell support, services, opportunities and community connections across the UK.

Your Community, Your Area

Find free local sickle cell services, support groups and community resources near you.

UK services map

Camden & Islington Sickle Cell & Thalassaemia Centre

Community centre providing counselling, education and screening.
17a Hornsey Street, London, N7 8GG

In Person

Can be used by: All Ages

Service Areas: Barnet, Camden, Enfield, Haringey, Islington

Last verified July 2026

Croydon Sickle Cell & Thalassaemia Centre

Community service providing counselling, education and support.
316–320 Whitehorse Road, Croydon, CR0 2LE

In Person

Can be used by: All Ages

Service Areas: Croydon

Last verified July 2026

South East London Integrated Care

Community support service for people living with sickle cell and thalassaemia.
Queen Elizabeth Hospital, Stadium Road, London SE18 4QH

In Person

Can be used by: All Ages

Service Areas: Bexley, Bromley, Greenwich, Lambeth, Lewisham, Southwark

Last verified July 2026

George Marsh Sickle & Thalassaemia Centre

Community sickle cell and thalassaemia centre.
George Marsh Centre, 195-197 High Road, London N15 4RS

In Person

Can be used by: All Ages

Service Areas: Haringey

Last verified July 2026

Liverpool Sickle Cell & Thalassaemia Support Group

Peer support group providing support, information and monthly meetings for people living with sickle cell and thalassaemia.
Abercromby Health Centre, Grove Street, Liverpool
L7 7HG

In Person

Frequency: Monthly

Can be used by: All Ages

Service Areas: Liverpool, Merseyside

Last verified July 2026

Sickle Cell Care Manchester

Community organisation providing advocacy, education, wellbeing and practical support.
City View House, 5 Union Street, Ardwick Green, Manchester
M12 4JD

In Person

Frequency: Ongoing

Can be used by: All Ages

Service Areas: Greater Manchester

Last verified July 2026

South Yorkshire Sickle Cell Organisation (SYSCO)

Community organisation providing advocacy, awareness, education and support.
110–120 The Wicker, Sheffield
S3 8JD

In Person

Frequency: Ongoing

Can be used by: All Ages

Service Areas: Sheffield, Barnsley, Doncaster, Rotherham

Last verified July 2026

OSCAR Birmingham

Community charity providing advocacy, welfare support, education and community engagement.
Side Entrance, 22 Regent Place, Birmingham
B1 3NJ

In Person

Frequency: Ongoing

Can be used by: All Ages

Service Areas: Birmingham

Last verified July 2026

OSCAR Sandwell

Community organisation providing welfare advice, advocacy, information and support.
120 Lodge Road, West Bromwich
B70 8PL

In Person

Frequency: Ongoing

Can be used by: All Ages

Service Areas: Sandwell, Dudley, Walsall, Wolverhampton

Last verified July 2026

Sickle Cell & Thalassaemia Support Project (SCTSP)

Community organisation providing advocacy, education and support.
Paycare House, George Street, Wolverhampton
WV2 4DX

In Person

Frequency: Ongoing

Can be used by: All Ages

Service Areas: Wolverhampton, Black Country

Last verified July 2026

OSCAR Bristol

Charity providing mentoring, advocacy, peer support and community events.
256 Stapleton Road, Easton, Bristol
BS5 0NP

In Person

Frequency: Ongoing

Can be used by: All Ages

Service Areas: Bristol & South West

Last verified July 2026

Watford Sickle Cell & Thalassaemia Support Group (WACA)

Volunteer-led support group for people living with sickle cell and thalassaemia and their carers.
WACA Community Centre, 145 St Albans Road, Watford
WD24 5BH

In Person

Frequency: Ongoing

Can be used by: All Ages

Service Areas: Hertfordshire

Last verified July 2026

Essex Sickle Cell Support Group

Community-led peer support group.
54 Trindehay, Basildon
SS15 5DN

In Person

Frequency: Varies

Can be used by: All Ages

Service Areas: Essex

Last verified July 2026

LBBD Sickle Cell Centre (Power House Community Network)

Community hub providing advice, outreach and support.
Unit 3 & 4, 280 Oxlow Lane, Dagenham
RM10 8LP

In Person

Frequency: Weekly Drop-in

Can be used by: All Ages

Service Areas: Barking & Dagenham

Last verified July 2026

Red Cells R Us

Monthly peer support group with guest speakers and advice sessions.
Sickle Cell & Thalassaemia Centre, 17a Hornsey Street, London
N7 8GG

In Person

Frequency: Monthly

Can be used by: All Ages

Service Areas: London

Last verified July 2026

Ealing, Hammersmith & Fulham Sickle Cell & Thalassaemia Support Group

Independent support group providing advocacy, advice and peer support.
Ruskin Hall, 16 Church Road, Acton, London
W3 8PP

In Person

Frequency: Monthly

Can be used by: All Ages

Service Areas: Ealing, Hammersmith & Fulham

Last verified July 2026

Croydon Sickle Cell & Thalassaemia Support Group

Community charity providing advocacy, education and peer support.
316 Whitehorse Road, Croydon
CR0 2LE

In Person

Frequency: Monthly

Can be used by: All Ages

Service Areas: Croydon

Last verified July 2026

Wandsworth Sickle Cell & Thalassaemia Support Group

Community support group offering advice and peer support.
The Office, 15 Broadwater Road, Tooting
SW17 0DS

In Person

Frequency: Monthly

Can be used by: All Ages

Service Areas: Wandsworth

Last verified July 2026

Sickle Cell Cause

Community organisation providing advocacy, education and peer support.
George Marsh Centre, St Ann's Hospital, St Ann's Road, Tottenham
N15 3TH

In Person

Frequency: Ongoing

Can be used by: All Ages

Service Areas: Barnet, Edgware, Enfield, Haringey and surrounding areas

Last verified July 2026

Sickle Plus

Community organisation providing support, awareness and education.
SP 39 Miles Building, Penfold Place, London
NW1 6RG

In Person

Frequency: Ongoing

Can be used by: All Ages

Service Areas: London

Last verified July 2026

Solace Support Group

Peer-led support group offering emotional support and community connection.
1B Madinah Road, London
E8 1PG

In Person

Frequency: Varies

Can be used by: All Ages

Service Areas: Hackney

Last verified July 2026

Guy's & St Thomas' Adult Sickle Cell Support Group

Online support group for adults, relatives and carers receiving care through GSTT.
Guy's Hospital, Great Maze Pond, London
SE1 9RT

Online

Frequency: Weekly

Can be used by: Adults, Relatives & Carers

Service Areas: GSTT Patients (South East London)

Last verified July 2026

King's College Hospital Adult Sickle Cell Support Group

Online support group for adults receiving care through King's College Hospital.
King's College Hospital, Denmark Hill
SE5 9RS

Online

Frequency: Monthly

Can be used by: Adults

Service Areas: South East London

Last verified July 2026

Lewisham & Greenwich Patient Support Group

Online support group for patients, relatives and carers.
University Hospital Lewisham
SE13 6LH

Online

Frequency: Monthly

Can be used by: All Ages

Service Areas: Lewisham & Greenwich

Last verified July 2026

Brent Sickle Cell Patient Support Group

Peer support group providing welfare advice, education, hospital visits, awareness events and support for people living with sickle cell and thalassaemia, together with their families and carers.
Central Middlesex Hospital, Acton Lane, London
NW10 7NS

In Person

Frequency: First Friday of every month, 7:00–9:00 pm

Can be used by: People with sickle cell, thalassaemia, families & carers

Service Areas: Brent

Last verified July 2026

Darent Valley & Gravesham Parent Support Group

Online support group for parents of children living with sickle cell.
Darent Valley Hospital, Darenth Wood Road
DA2 8DA

Online

Frequency: Monthly

Can be used by: Parents & Carers

Service Areas: Dartford & Gravesham

Last verified July 2026

The Hope Project Scotland

Charity providing crisis support, peer support, youth empowerment, advocacy, education and family wellbeing services for people affected by sickle cell disease and other blood disorders.
Floor 1, 38 Cadogan Street, Glasgow
G2 7LP

Hybrid

Frequency: Weekly peer groups plus regular family activities and community events

Can be used by: Children, Young People, Adults, Families & Carers

Service Areas: Scotland

Last verified July 2026

Friends of Cymru Sickle Cell & Thalassaemia (FOCSCT)

Welsh organisation providing peer support, advocacy, education, awareness and family support for people living with sickle cell and thalassaemia.
Llanrumney Hall, Ball Road, Llanrumney, Cardiff
CF3 4JJ

Hybrid

Frequency: Monthly + Community Events

Can be used by: All Ages

Service Areas: Wales

Last verified July 2026

Warrior Support Group (SC.CAUSE)

Peer-to-peer support programme offering emotional support, wellbeing activities, family support and online community for people affected by sickle cell.

Online

Frequency: Ongoing (Discord & Community Sessions)

Can be used by: People living with sickle cell, carers & families

Service Areas: United Kingdom

Last verified July 2026

West Midlands Sickle Cell & Thalassaemia Association (BCABS)

Community organisation providing awareness, education, advocacy and signposting for people living with sickle cell and thalassaemia across the West Midlands.
First Floor, Wellington House, 31–34 Waterloo Street, Birmingham
B2 5TJ

In Person & Community Events

Frequency: Varies

Can be used by: All Ages

Service Areas: Birmingham, Sandwell & West Midlands

Last verified July 2026

Know a local service we should include?

Help us keep this directory up to date by letting us know about sickle cell or thalassaemia support services in your area.

Get in touch

111 (NHS 111)
How they support: Provides 24/7 urgent medical advice, mental health crisis support, and signposting to the appropriate NHS service for non-life-threatening emergencies.
Contact: 111

CALM (Campaign Against Living Miserably)
How they support: Provide 24/7 suicide prevention and mental health support via helpline and webchat.
Contact: 0800 58 58 58

Childline
How they support: Provide 24/7 confidential support for children and young people under 19 about any issue.
Contact: 0800 1111

PAPYRUS HOPELINE247
How they support: Provide 24/7 confidential suicide prevention support for people under 35 and anyone concerned about a young person at risk.
Contact: 0300 102 2470 or
Text HOPE to 88247
Email: pat@papyrus-uk.org

Samaritans
How they support: Provide 24/7 confidential emotional support for anyone experiencing distress or suicidal thoughts.
Contact: 116 123

Shout
How they support: Free, confidential 24/7 mental health support by text for anyone in crisis.
Contact: Text SHOUT to 85258

Sickle Cell Society Support Line
How they support: Information, practical advice and emotional support for people living with sickle cell and their families.
Contact: 020 8961 7795
Email: info@sicklecellsociety.org

Anxiety UK
How they support:
Specialist charity providing support, information and resources for people living with anxiety, panic attacks and related conditions.
Contact: 03444 775 774
Email: support@anxietyuk.org.uk

CALM
How they support:
Provides mental health support, suicide prevention resources, and a confidential helpline and webchat for anyone struggling.
Contact: 0800 58 58 58

Hub of Hope
How they support:
UK's largest mental health support directory, helping people find local and national mental health services.

Mind
How they support:
Provides mental health information, advice, local support services, and campaigns to improve mental health care.
Contact: 0300 123 3393
Email: info@mind.org.uk

NHS Talking Therapies
How they support:
Free NHS service offering assessment and treatment for anxiety, depression and other common mental health conditions through talking therapies.

Rethink Mental Illness
How they support:
Provides practical advice, information, support groups and services for people living with severe mental illness, as well as support for carers.
Contact: 0808 801 0525

SANE
How they support:
Provides emotional support, practical information and guidance for anyone affected by mental health conditions.
Contact: 0300 304 7000

NHS Haemoglobinopathy Coordinating Centres (HCCs)
How they support:
Coordinates specialist care for people living with sickle cell disorder and other inherited blood disorders through regional expert centres, multidisciplinary teams and clinical networks.

NHS Sickle Cell & Thalassaemia Community Services
How they support:
Provides specialist community nursing, education, family support, counselling, transition support and advice for people living with sickle cell and thalassaemia. Can also help you find your local community service.
Contact: 020 3447 9363
Email: uclh.sicklecellcommunity@nhs.net

Sickle Cell Society
How they support:
National charity providing information, education, advocacy, peer support, research and resources for people living with sickle cell and their families.
Contact: 020 8961 7795
Email: info@sicklecellsociety.org

UK Forum on Haemoglobin Disorders (UKFHD)
How they support:
Develops national clinical standards, treatment guidelines and educational resources to improve care for people living with sickle cell disorder and other haemoglobin disorders.
Email: info@ukfhd.org

Healthwatch England
How they support:
Independent champion for people using health and social care services. Provides advice, helps people share feedback, and works to improve NHS and social care services.
Contact: 03000 683000

NHS App
How they support: Lets you access your GP health record, order repeat prescriptions, manage appointments, view test results and access NHS services from your phone or computer.

NHS England
How they support: Provides national NHS information, guidance, policies and access to healthcare services in England.

NHS Inform Scotland
How they support:
Scotland's national health information service, providing trusted health advice, symptom guidance and information on NHS services.
Contact: 0800 22 44 88

NHS Service Finder
How they support: Helps you find nearby NHS services, including GPs, pharmacies, hospitals, urgent treatment centres, dentists and other healthcare providers.

NHS Wales
How they support: Provides national health information, guidance and access to NHS services across Wales.

Patient Advice and Liaison Service (PALS)
How they support: Offers confidential advice and support to help resolve concerns about NHS care, answer questions and guide patients through the complaints process before making a formal complaint.

Get help accessing benefits and other disability services

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Carers Trust
How they support:
 Provides practical support, information and local services for unpaid carers, including young carers and adult carers looking after a family member or friend.
Contact: 0300 772 9600
Email: info@carers.org

Carers UK
How they support:
 Provides advice, information and practical support for unpaid carers, including guidance on benefits, employment, finances and wellbeing.
Contact: 0808 808 7777
Email: advice@carersuk.org

Contact
How they support:
 Supports families caring for children with disabilities or additional health needs, offering advice on benefits, education, social care, family life and emotional wellbeing.
Contact: 0808 808 3555
Email: helpline@contact.org.uk

Sickle Cell Society – Family & Youth Services
How they support:
 Provides support, information and peer connection for children, young people, parents and families affected by sickle cell, including youth engagement and family-focused initiatives.
Contact: 020 8961 7795
Email: info@sicklecellsociety.org

Access To Work
Provides funding and practical support to make work and the workplace more accessible for people with disabilities.

ACAS
How they support:
Offers free advice on employment rights, workplace issues, reasonable adjustments and resolving disputes at work.
Contact: 0300 123 1100

Disability Rights UK
How they support:
Provides guidance on disability rights in education and employment, including reasonable adjustments and workplace support.

Equality Advisory Support Service (EASS)
How they support:
Offers advice and support on discrimination, human rights and Equality Act 2010 rights.
Contact: 0808 800 0082

Prospects
How they support:
Provides careers advice, graduate opportunities and guidance for students and graduates, including information on disability support.

Student Finance England
How they support:
Provides financial support for higher education, including information on additional funding available to disabled students.
Contact: 0300 100 0607

UCAS – Disabled Students
How they support:
Provides guidance on applying to university, disability support and reasonable adjustments available in higher education.

Universities UK
How they support:
Provides information on studying in higher education, including disability support and inclusive learning.

Help Us Grow Your Sickle Cell Community

Your SC Community is designed to grow alongside the people who use it. If there's a resource, service or feature you'd like to see added, we'd love to hear from you. Have an idea? Let us know