The Healthcare Resource Hub

Healthcare professionals don't need to memorise everything - they need the right information at the right moment. The Resource Hub brings together practical, patient-informed resources designed to help you deliver compassionate, evidence-based sickle cell care.

Quick Reads

Short, practical guides that can be read in just a few minutes and applied in everyday clinical practice.

Myth vs Fact

Misconceptions can contribute to delays, stigma and poorer patient experiences. Understanding the facts helps support safer, more compassionate care.
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Pain Plans in Practice

Pain Plans help healthcare professionals understand how a patient's pain is typically managed, reducing delays and supporting timely, individualised care.

20 Common Questions from Healthcare Professionals

Quick, evidence-based answers to the questions we hear most often about sickle cell care.

What Makes Good Sickle Cell Care?

Six evidence-based principles that support more informed, compassionate and effective sickle cell care.

Why Sickle Cell Care Should Be Approached Differently

Every person living with sickle cell experiences the condition differently. Recognising this is key to delivering safe, effective and person-centred care.
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Clinical Resources

ACT NOW is a nationally recognised framework for the rapid assessment and management of sickle cell crises. Developed with clinicians and people living with sickle cell, it provides practical guidance on timely analgesia, compassionate care, appropriate investigations, escalations and ongoing monitoring.

Most useful for: Healthcare providers responding to patients presenting with an acute sickle cell crisis.

  • RCEM Best Practice Guideline

    Comprehensive emergency medicine guidance for managing acute sickle cell presentations. Covers assessment, pain management, investigations, serious complications, escalation, discharge planning and includes the ACT NOW framework and clinical pathway.


    Most useful for:     Emergency clinicians and acute care teams managing sickle cell presentations.

  • NICE CG143 – Managing Acute Painful Episodes in Hospital

    National evidence-based guidance covering the assessment and management of acute painful sickle cell episodes, including timely analgesia, monitoring, reassessment, discharge planning and person-centred care.


    Most useful for:     Healthcare providers involved in the hospital management of sickle cell crises.

  • National Haemoglobinopathy Panel

    NHS England's national programme to improve sickle cell and thalassaemia care through specialist services, national standards, clinical pathways and quality improvement initiatives.


    Most useful for:     Healthcare providers wanting to understand specialist haemoglobinopathy services, national standards and care pathways.

  • West London Haemoglobinopathy Coordinating Centre Resources

    A specialist resource library containing clinical guidelines, referral pathways, nursing guidance, transfusion resources, simulation training, the Universal Care Plan and educational materials.


    Most useful for:     Healthcare providers looking for specialist clinical guidance and practical resources.

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Education & Training

  • King's Health Partners – Acute Sickle Care Training Tool

    A practical 30-minute online course introducing the assessment and management of patients admitted with acute sickle cell complications. Covers pain management, common complications, patient-centred care and the impact of stigma, with a certificate available on completion.


    Most useful for:     Healthcare providers new to caring for patients with acute sickle cell complications.

  • Haemoglobinopathy Coordinating Centre – Educational Videos

    A library of recorded teaching sessions from haemoglobinopathy specialists covering topics such as acute pain management, acute chest syndrome, blood transfusion, nutrition, transplantation and advances in sickle cell care.


    Most useful for:     Healthcare providers wanting to deepen their knowledge through expert-led teaching sessions.

  • Sickle Cell Disorder National Education Programme

    A free NHS e-learning programme covering the fundamentals of sickle cell disease, acute care, common complications, patient experience, stigma and person-centred care. Includes interactive modules and knowledge checks.


    Most useful for:     Healthcare providers wanting to build or refresh their knowledge of sickle cell disease.

  • RCN – Sickle Cell Disease: Essentials for the Non-Specialist

    A practical overview designed for non-specialists, covering the fundamentals of sickle cell disease, recognising deterioration, managing crises and delivering safe, compassionate care.


    Most useful for:     Healthcare providers who encounter sickle cell occasionally and want a quick, practical introduction.

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